18th to 20th March 2004 9th European Conference on Epilepsy and Society Malta - 11/3/2004

in conjunction with the
National Epilepsy Conference - Malta 2004
18th-20th March

(Reduced participation fee for local participants LM45)

Dear Colleague

It is a meeting that allows direct interactions between lay organisations for people with epilepsy, and the health care professionals and neurologists involved in the treatment of people with epilepsy.

This two-day conference will be held in conjunction with the 2004 National Epilepsy Conference of the Caritas Malta Epilepsy Association. This conference means a great deal for the Maltese Chapter, as it opens new horizons in our work of creating awareness of epilepsy locally. It will also be a privilege for our association to have people coming from all over Europe to be among us.

The theme of the conference will be "Focusing on Change". Discussions will be held on how change can come about with regards to the management and treatment of epilepsy. The organising committee has created a programme where the first day concentrates on sharing the experiences of people with epilepsy and the second day will highlight developments in care and how to work for change. Various persons will be giving their experiences of how they handled their situation in different settings and how changes occurred in their lives. The conference is being held at the newly refurbished Dolmen Hotel Resort in Bugibba.

The local organising committee has managed to obtain a special reduced registration fee for Maltese participants of LM45 covering all meals and coffee breaks.

However, through kind support of various sponsors, the first 100 local persons with epilepsy and/or their relatives who register may obtain a special reduced registration fee of LM20 on request. Reductions for other participants may also be given on request. Local participants may also stay at the Dolmen hotel at a special reduced rate for all participants (twin sharing LM20, single room LM16 per night).

We hope to see you there.
Mario Dimech, Godwin Cachia, Janet Mifsud, Frank Portelli, Connie Baker,
Louis Vella, Anna Debattista, Doriette Soler, Godfrey Kenely
Caritas Malta Epilepsy Association - Local Organising



Thursday 18th March 2004 Opening Ceremony
19.00 Reception at the Presidentís Palace, Valletta

Friday 19th March 2004 Living with Epilepsy

9:00 - 10:30 Personal Experiences Chairperson: Hilary Mounfield, UK
A Parents' experience - Tanya Carabott, Malta
Epilepsy and Teenagers - Stine Larsen, Norway
Women with epilepsy - Ida Soling, Denmark
Epilepsy and Men - Michael Alexa, Austria
10:30 Coffee Break
11:00 - 12:30 The Impact of Epilepsy Chairperson: Mike Glynn, Ireland
Employment - Mario Dimech, Malta
Education - Brigitte Bonard-Breack, France
Lifestyle - Rene Blum, Netherlands
SUDEP - Patricia Findlay, UK

12:30 Lunch Break
14:00 - 15:30 Parallel Workshops - "Focusing on change - what are my choices?"
15:30 Coffee Break
16:00 - 17:00 Concluding session to sum up workshop findings. Chairperson: Tamar Vital, Israel

Saturday 20th March 2004 How Change Can Be Brought About

9:00 - 11:00 Delivering Improvements in Healthcare Chairperson: Janet Mifsud, Malta
GPs and Epilepsy - Greg Rogers, UK
Early energetic medical treatment in epilepsy syndromes- Pierre Genton, France
Old vs. New Medicines in Epilepsy - Peter Wolf, Germany & Emilio Perucca, Italy
11:00 Coffee Break
11:30 - 13:00 EUCARE Action Pack
Chairperson: Philip Lee
Working with the media - A.N. Other
Advocacy - Susanne Lund, Sweden
Working together with other agencies - Jane Hanna, UK
Parliamentary Activity - Allana Parker, UK

13:00 Lunch Break
14:00 - 15:30 Parallel Workshops - Achieving change in your own country
15:30 Coffee Break
16:00 - 17:00 Concluding session to sum up workshop findings. Chairperson: Hilary Mounfield

19.30 Gala Dinner (optional)

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